Multiple Sclerosis (MS)
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For More Information
For more information on neurological disorders or research programs funded by the National Institute of Neurological Disorders and Stroke (NINDS), contact the Institute's Brain Resources and Information Network (BRAIN) at:
BRAIN
P.O. Box 5801
Bethesda, MD 20824
800-352-9424
www.ninds.nih.gov
Information also is available from the following organizations:
Clearinghouse on Disability Information
Special Education & Rehabilitative Services Communications & Customer Service Team
550 12th Street, SW, Rm. 5133
Washington, DC 20202-2550
www.ed.gov/about/offices/list/osers
Tel: 202-245-7307 202-205-5637 (TTD)
Fax: 292024507636
International Essential Tremor Foundation
P.O. Box 14005
Lenexa, KS 66285-4005
staff@essentialtremor.org
www.essentialtremor.org
Tel: 913-341-3880 888-387-3667
Fax: 913-341-1296
Provides educational information, funds research in tremor disorders, and offers services and support to individuals diagnosed with essential tremor, their families, and health care providers. Information and support includes a quarterly newsletter, support groups, and physician information and referrals.
Multiple Sclerosis Association of America
706 Haddonfield Road
Cherry Hill, NJ 08002
webmaster@msaa.com
www.msassociation.org
Tel: 856-488-4500 800-532-7667
Fax: 856-661-9797
National, non-profit organization dedicated to enhancing the quality of life for those affected by Multiple Sclerosis (MS). MSAA provides ongoing support and direct services to individuals with MS and their families and works to promote a greater understanding of the needs and challenges of those who face physical obstacles.
Multiple Sclerosis Foundation
6350 North Andrews Avenue
Ft. Lauderdale, FL 33309-2130
support@msfocus.org
www.msfocus.org
Tel: 954-776-6805 888-MSFOCUS (673-6287)
Fax: 954-351-0630
Dedicated to helping people with MS, the Multiple Sclerosis Foundation offers a wide array of free services including: national toll-free support, educational programs, homecare services, support groups, assistive technology programs, publications, a comprehensive website, and more programs to improve the quality of life for those affected by MS.
National Rehabilitation Information Center (NARIC)
4200 Forbes Boulevard
Suite 202
Lanham, MD 20706-4829
naricinfo@heitechservices.com
www.naric.com
Tel: 301-459-5900/301-459-5984 (TTY) 800-346-2742
Fax: 301-562-2401
National Ataxia Foundation (NAF)
2600 Fernbrook Lane North
Suite 119
Minneapolis, MN 55447-4752
naf@ataxia.org
www.ataxia.org
Tel: 763-553-0020
Fax: 763-553-0167
Encourages and supports research into the hereditary ataxias, a group of chronic (lasting a long time) and progressive neurological disorders affecting coordination. Sponsors chapters and support groups throughout the U.S.A. and Canada. Publishes a quarterly newsletter and educational literature on the various forms of ataxia.
National Multiple Sclerosis Society
733 Third Avenue
6th Floor
New York, NY 10017-3288
nat@nmss.org
www.nationalmssociety.org
Tel: 212-986-3240 800-344-4867 (FIGHTMS)
Fax: 212-986-7981
Funds research, helps families stay together, provides accurate and up to date information, helps with employment issues, offers free counseling, runs self help groups, advocates for people with disabilities, and provides referrals to medical professionals.
American Autoimmune Related Diseases Association
22100 Gratiot Avenue
Eastpointe
East Detroit, MI 48201-2227
aarda@aarda.org
www.aarda.org
Tel: 586-776-3900 800-598-4668
Fax: 586-776-3903
National organization that works to alleviate suffering and the socioeconomic impact of autoimmunity. Dedicated to the eradication of autoimmune diseases through fostering and facilitating collaboration in the areas of education, research, and patient services.
National Organization for Rare Disorders (NORD)
P.O. Box 1968
(55 Kenosia Avenue)
Danbury, CT 06813-1968
orphan@rarediseases.org
www.rarediseases.org
Tel: 203-744-0100 Voice Mail 800-999-NORD (6673)
Fax: 203-798-2291
Federation of voluntary health organizations dedicated to helping people with rare "orphan" diseases and assisting the organizations that serve them. Committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service.
Well Spouse Association
63 West Main Street
Suite H
Freehold, NJ 07728
info@wellspouse.org
www.wellspouse.org
Tel: 800-838-0879 732-577-8899
Fax: 732-577-8644
International non-profit organization whose mission is to provide emotional support to, raise consciousness about, and advocate for the spouses / partners and children of the chronically ill and / or disabled.
Paralyzed Veterans of America (PVA)
801 18th Street, NW
Washington, DC 20006-3517
info@pva.org
www.pva.org
Tel: 202-USA-1300 (872-1300) 800-424-8200
Fax: 202-785-4452
Non-profit organization dedicated to serving the needs of its members - more than 19,000 veterans paralyzed by spinal cord injury or disease, as well as caregivers and others affected by these disabilities - through advocacy, education, and research programs.
Accelerated Cure Project for Multiple Sclerosis
300 Fifth Avenue
Waltham, MA 02451
info@acceleratedcure.org
www.acceleratedcure.org
Tel: 781-487-0008
Fax: 781-487-0009
National non-profit organization dedicated to the creation and execution of a plan to cure MS by determining its causes. Developing a multi-disciplinary blood, tissue, and data bank.
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References:
Office of Communications and Public Liaison
National Institute of Neurological Disorders and Stroke (NINDS)
National Institutes of Health
January 23, 2008
www.ninds.nih.gov/disorders/multiple_sclerosis/detail_multiple_sclerosis.htm
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